Negotiating bioethics : the governance of UNESCO's Bioethics Programme / Adèle Langlois.

By:

Langlois, Adèle [author.]

Material type: Text

TextSeries: Genetics and society (Series)Publisher: Abingdon, Oxon [England] : Routledge, 2013Description: 1 online resource (xviii, 192 pages)Content type:

text

Media type:

computer

Carrier type:

online resource

ISBN:

9781136237003
1136237003
9780203101797
0203101790
1299792154
9781299792159
9781136237010
1136237011
9781136236969
1136236961

Subject(s):

Genre/Form:

Additional physical formats: Print version:: Negotiating bioethics.DDC classification:

174.2 23

LOC classification:

R724 .L264 2013eb

NLM classification:

WB 60

Other classification:

POL011000 | SCI010000 | SOC000000

Online resources:

EBSCOhost

Contents:

Introduction -- Bioethics: human genetic and biomedical research ethics at UNESCO and beyond -- Global governance: a conceptual framework for analysing bioethics at UNESCO -- Deliberating bioethics: UNESCO's standard-setting activities -- Implementing bioethics: UNCESCO's efforts to realize and enforce the declarations -- Contextualizing bioethics: the declarations in Kenya and South Africa -- Conclusions.

Summary: "The sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCO's Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning. Negotiating Bioethics presents Langlois' research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out in Kenya, South Africa, France and the UK, among policy-makers, geneticists, ethicists, civil society representatives and industry professionals. The book examines whether the UNESCO Bioethics Programme is an effective forum for (a) decision-making on bioethics issues and (b) ensuring ethical practice. Considering two different aspects of the UNESCO Bioethics Programme - deliberation and implementation - at international and national levels, Langlois explores: - how relations between developed and developing countries can be made more equal - who should be involved in global level decision-making and how this should proceed - how overlap between initiatives can be avoided - what can be done to improve the implementation of international norms by sovereign states - how far universal norms can be contextualized - what impact the efficacy of national level governance has at international level Drawing on extensive empirical research, Negotiating Bioethics presents a truly global perspective on bioethics"-- Provided by publisher

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Includes bibliographical references and index.

"The sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCO's Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning. Negotiating Bioethics presents Langlois' research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out in Kenya, South Africa, France and the UK, among policy-makers, geneticists, ethicists, civil society representatives and industry professionals. The book examines whether the UNESCO Bioethics Programme is an effective forum for (a) decision-making on bioethics issues and (b) ensuring ethical practice. Considering two different aspects of the UNESCO Bioethics Programme - deliberation and implementation - at international and national levels, Langlois explores: - how relations between developed and developing countries can be made more equal - who should be involved in global level decision-making and how this should proceed - how overlap between initiatives can be avoided - what can be done to improve the implementation of international norms by sovereign states - how far universal norms can be contextualized - what impact the efficacy of national level governance has at international level Drawing on extensive empirical research, Negotiating Bioethics presents a truly global perspective on bioethics"-- Provided by publisher

Online resource; title from PDF title page (OAPEN Library, viewed May 26, 2016).